Resources

VANCOUVER PATIENT SERVICES

BC Cancer operates six regional cancer centres providing the entire continuum of cancer care, from  prevention and screening, to diagnosis,  chemotherapy & radiation treatments, through to rehabilitation, survivorship and supportive care for cancer patients. Each of BC Cancer’s centres delivers cancer treatment based on provincial standards and guidelines established by BC Cancer. In collaboration with communities, BC Cancer also provides a network of chemotherapy clinics so patients can receive care closer to home. BC Cancer delivers care at six regional centres located in AbbotsfordKelownaPrince GeorgeSurreyVancouver and Victoria

 

BC Cancer Research Centre and BC Cancer Foundation are also located in Vancouver, and are dedicated to transforming the lives of patients in BC through world-class cancer research.  

 

BC Cancer – Abbotsford 

32900 Marshall Road

Abbotsford, BC, V2S 1K2

Phone: 604-851-4710

Toll Free: 1-877-547-3777

(integrated within the Abbotsford Regional Hospital & Cancer Centre)

BC Cancer – Kelowna (Sindi Ahluwalia Hawkins Centre)

399 Royal Avenue

Kelowna, BC, V1Y 5L3

Phone: 250-712-3900

Toll Free: 1-888-563-7773

(located adjacent to Kelowna General Hospital)

BC Cancer – Prince George (Centre for the North)

1215 Lethbridge Street

Prince George, BC, V2M 7E9

Phone: 250-645-7300

Toll-free: 1-855-775-7300

BC Cancer – Surrey

13750 96th Avenue

Surrey, BC, V3V 1Z2

Phone: 604-930-2098

Toll Free: 1-800-523-2885

(located adjacent to Surrey Memorial Hospital)

BC Cancer – Vancouver

600 West 10th Avenue

Vancouver, BC, V5Z 4E6

Phone: 604-877-6000

Toll Free: 1-800-663-3333

BC Cancer – Victoria

2410 Lee Avenue

Victoria, BC, V8R 6V5

Phone: 250-519-5500

Toll Free: 1-800-670-3322

(located adjacent to Royal Jubilee Hospital)

The BC Cancer Agency may be where you go for your chemo treatments, however there’s a lot more to it than just that. Below are some of the valuable services they can provide.  Also suggest visiting BC Cancer website for helpful ‘Guidebook for Patients’ for a complete reference to all information and services.

Location

600 West 10th Avenue

Vancouver, BC, V5Z 4E6

Telephone: 604-877-6000

Toll-free (within BC): 1-800-663-3333

Hours: 8:30 am – 4:30 pm, Monday to Friday (excluding statutory holidays)

BC Cancer Supportive Care Services: includes patient & family counselling, nutrition, pain & symptom management, palliative care, physiotherapy, and more. Supportive care professionals are a part of your cancer care team. Some services are self-referred, while other may require a referral from your doctor or nurse.

BC Cancer Patient and Family Counseling Services

You and/or a family member can have no-cost sessions with a counsellor, in person over the phone or via zoom. They can offer help with navigating your new situation, your emotions, problems in relationships and practical and financial concerns. They’ll also provide information regarding transportation, financial aid, community services, resources, and other practical help. You can get this service for you and your family during your treatment and up to 18 months afterwards.  BC Cancer also has psychiatrists who can help with anxiety, insomnia and changes in your personality or thoughts. Talk to your doctor or nurse if you would like to see a psychiatrist.

BC Cancer Counseling also offers group programs and educational sessions.  Notifications for many of these are posted on bulletin boards in the lobby and around the building. For schedules and more information contact BC Cancer.  

Get information or register at 604-877-6000 Ext. 672194

BC Cancer Regional Counselling Services

Counsellors at regional cancer centres can speak with you or a family member in person, over the phone, or virtually about practical and emotional concerns.  There is no cost as it’s part of your BC Cancer care

    • Abbotsford – 604-851-4733 or 1-877-547-3777 ext 644733
    • Kelowna – 250-712-3963 or 1-888-563-7773
    • Prince George – 250-645-7330 or 1-855-775-7300
    • Vancouver – 604-877-6000 ext. 672194
    • Victoria – 250-519-5500 or 1-800-670-3322

Mindfulness-Based Stress Reduction Program

This is an eight-week program offered twice a year. It introduces mindfulness practices based on Jon Kabat-Zinn’s MBSR program at the Massachusetts Medical Center.  


After Active Treatment Healing Series

This four-session education and support series is offered twice a year. It is for patients interested in learning how best to move forward from cancer treatment. The series is interactive and creatively supports your healing and recovery as you begin to ask and plan for, ‘what’s next?’


Relaxation and Music Therapy Group

This is a guided group for patients and caregivers struggling with heightened anxiety, depression or stress. It’s drop-in and doesn’t require pre-registration.


Art for Self-Care

This group is for young adults (19-40ish) anywhere in BC who are interested in trying art therapy techniques. Group members connect virtually.

Email to rsvp:


Art Therapy

This group helps learners develop new skills and build resiliency to cope through creative artmaking.


Support Circle

Support circle offers restorative care and comfort in a safe and accepting environment where participants speak thoughtfully about their own experience with cancer, listen attentively to one another and lean into their shared journey. Those living with cancer, as well as friends and caregivers, are welcome. Pre-registration required.


BC Cancer Look Good Feel Better program

These no-cost programs help women living with cancer learn special cosmetic techniques and tips on wigs and head coverings to help them cope with the appearance-related side effects of cancer treatment. In addition, a wig consultation and stylist service may be available. To learn more or find a workshop in your area, call 1.800.914.5665 or visit Look Good Feel Better. The Canadian Cancer Society Cancer Lodge may also have wigs to borrow or free head coverings for patients. Canadian Cancer Society 1-888-939-3333


Work-Related Concerns/Vocational Rehabilitation Counselling

This program includes: vocational counselling and assessment, resource referrals and information and advocacy related to work issues. These sessions are led by a vocational rehab counsellor specializing in cancer and work.

Some other work-related group sessions that may be offered: 

Returning to Work, Job Hunting, Looking for Work Using Social Media and Returning to a Former Workplace


Physiotherapy

BC Cancer offers no-cost telephone or video appointments with a physiotherapist who can prescribe home safety equipment and individualized exercises to help you with movement, fatigue, balance and more. You can also speak to an oncology exercise psychologist at Healthlink BC (dial 811)


Pain and Symptom Management

If you have difficulty managing your pain or other physical problems, they have specialist doctors and nurses who can help. Your family doctor or oncologist can refer you.


Nutrition

You can meet or speak by phone or zoom with a registered dietician to help you with eating and nutrition challenges during your cancer treatment. Ext. 672013. You can also speak with an oncology dietician at Healthlink BC (dial 811).


Spiritual Health Care

A Spiritual Health Practitioner can offer confidential patient and family support in moments of need. Care is based on the patient’s beliefs, cultural background, values, traditions and practice. Practitioners are multi-faith trained by the Canadian Association of Spiritual Care, their certifying body. Ext. 672194

Some other group sessions that may be available:

  • First Nation and Metis Patient Resources
  • Tips for Sleep
  • Spirituality: A valuable Inner Resource on your Cancer Journey

BC Cancer Patient Care Nurse Helpline

There is no emergency care facility at BC Cancer in Vancouver, however, if you have questions, you can try the helpline, Mon-Fri 8:30-5 pm at 604-877-6025.

You can ask medical questions like:

    • I missed my chemo pill. Should I take another?
    • How do I take my anti-nausea medication?
    • I have finished treatment but am having new symptoms; who should I talk to?

Cantonese and Mandarin language support:

  • Mindfulness-based stress reduction program
  • Monthly support group
  • Art Therapy Group
  • Bilingual patient education and resource materials
  • 605-877-6000 Ext. 672375 (Chinese) or Ext. 672194 (English)

BC Cancer Pharmacy

This is where you can pick up your chemo pills.  Note: You need to call them 2 days before to confirming you will be picking up.  They do not automatically fill your prescription on file.  Call 604-877-6135 and leave a detail message.


Pharmacy Drug Information Line

If you want to determine if a medication you are taking or considering taking will interact with your chemo, call 604-877-6000 e 67223

Release of Information

Talk to them if you need insurance forms filled out/signed by your doctor or if you want to get your medical records. 604-877-6000 ext.672334


Appointment Line

For questions about BC Cancer appointments, blood requisitions, etc., call 604-877-6218


Cancer Information Centre

Located in the lobby for patients, families and their support persons, it has pamphlets, books, videos and CDs available for loan. Volunteers are available for assistance.


Cafeteria

The cafeteria is open to patients, and their families from 7:00 am to 2:00 pm, Monday to Friday. There is also a wide array of eateries within a few blocks. A ‘comfort cart,’ operated by volunteers, offers complimentary tea, coffee, and snacks.

Also available at BC Cancer Vancouver:

    • Dentist
    • Patient Lounge
    • Patio
    • Quiet space

You can register/get more information on these programs at 604-877-6000 Ext. 6an

BC Cancer Vancouver – Main Library 
BC Cancer Research Centre

675 West 10th Avenue

Vancouver, BC 
Canada V5Z 1L3 

(604) 675-8001 or toll-free within British Columbia and Yukon 1-888-675-8001 x 8001

Public Hours: Mon-Thurs 8:30 am – 4:30 pm

 

*During COVID-19, you should confirm that the facility is open to the public. If COVID restrictions are in effect, they are open online and can lend library materials via free postal mail delivery or curbside pick-up. The library can also answer cancer-related health information questions via phone, email, Zoom, or Skype. 

 

 

The BC Cancer Library has many helpful and fascinating books, eBooks and other materials. Here is a link to the BC Library catalogue and how to register for eBook access and a library card.  You can pick up your order from the library, or they will mail items to you for free, with return postage included. Loans are for 28 days.

 

 

For remote eBook access, all you need to do is set up a UserID and password from a BC Cancer networked computer or contact and they can help you set up an account.

 

Here is a link to the BC Cancer Library’s New Release eBooks

  • Admitting & Reception: 604-877-6050
  • Ambulatory Care Reception: Toll-free (within BC) 1-800-663-3333 (ask for Ambulatory Care)
  • Appointment Changes: Toll-free (within BC) 1-800-663-3333 (ask for Ambulatory Care)
  • Chemotherapy: 604-877-6218 (Hours: 7:30 am – 6:30 pm, Monday to Friday, excluding statutory holidays, availability may change depending on workload)
  • Library & Cancer Information Centre: 604-675-8001, toll-free (within BC) 1-888-675-8001 ext. 8001
  • Nutrition Services: 604-877-6000 ext. 2013
  • Patient Care Nurse Line: 604-877-6025 (Hours: 8:30 am – 5:00 pm, Monday to Friday, excluding statutory holidays)
  • Patient & Family Counselling: 604-877-6000 ext. 2194
  • PET (Functional Imaging): 604-707-5951 (Hours: 7:00 am – 6:30 pm, Monday to Saturday, excluding statutory holidays)
  • Pharmacy: 604-877-6135 (Hours: 8:30 am – 5:00 pm, Monday to Friday, excluding statutory holidays)
  • Radiation Therapy: 604-877-6000 ext. 676014 (Hours: 8:30 am – 6:00 pm, Monday to Friday, excluding statutory holidays, availability may change depending on workload)
  • Release of Information (health record requests): 604-877‐6000 ext. 672334, fax 604-877‐0702 

Vancouver General Hospital (VGH) Outpatient Services

  • VGH outpatient BMT Daycare Unit is located at Blackmore Pavilion, 6th Floor
    855 West 12th Avenue, Vancouver, BC
  • Direct phone number to the VGH BMT Daycare nurses’ station – 604-875-4073
  • VGH Translator/Language Interpreters – Interpreters are available for patients who have limited English. Speak with your healthcare providers.
  • VGH Spiritual Care – Ask your nurse for a referral to VGH Spiritual Care services where a non-denominational professional can meet with you. A quiet room on the ground floor of Leon Blackmore Pavilion near the evaluators is open to everyone for prayer, meditation, reflection, and ceremony.
  • VGH’s CIBC Centre for Patients and Families 604-875-5887
  • Quiet area located in VGH’s main lobby offers access to computers, phones, printers etc. A librarian is also available to help recommend books & resources.
  • VGH Aboriginal Patient Navigator Program 1-877-875-1131
  • Traditional ceremonies such as smudging, cedar and elder fan brushings or blanketing are available with a referral. Visit the First Nations Health Authority’s

Parking at Vancouver General Hospital and BC Cancer

The entrance to the BCCA parkade is off Ash Street at the corner of West 10th Avenue. You can enter the building from parkade levels 1, 2 or 3. There is an area for patient drop-off and pick-up and two parking stalls at the 10th Avenue entrance. Paid parking time allowed at the entry area is 15 minutes.

*If parking charges create a hardship for you, you can talk to your BCCA social worker/counsellor for more information. They also may be able to help you apply for a parking pass for VGH, etc., or a handicapped parking pass if needed.

 

Parking Fees

  • $3.50/hr with a max of $14.25/day*
  • rates are subject to change without notice
  • Long term BC Cancer patients can purchase passes from the attendant in the booth at the entrance to the parkade.
  • $51.75 every seven days or portion
  • $103.25 each month or portion
  • Metro lot supervisor 604-417-6545

Additionally, there are parking meters on Ash and other nearby streets and several other parkades in the area.

Tip: If you have a quick appointment, you could try parking at the City Square shopping center. It is a half-block away at Ash and 12th Ave. If you make a purchase at one of the shops (Safeway), a merchant can stamp your ticket, giving you a free first hour.

VGH has two large parkades.  One located under the Leslie Diamond building and one across from VGH main entrance off West 12th.  There is also meter parking nearby.  If you’re lucky you may find free 2hr parking near the VGH parkade. 

Inspire Health Supportive Cancer Care

Location – 200 – 330 W 8th Ave Unit, Vancouver

Phone – 604-734-7125

We are extremely fortunate to have  Inspire Health services and facility in our backyard.  Inspire Health is a free integrative cancer care centre offering supportive programs and services to enhance the quality of life, health, and well-being of people living with cancer. All services, programs, and classes are free, and no referral is required. Patients and their caregivers can select from an extensive selection of programs and services to promote health and healing during and after standard cancer treatments such as chemotherapy.

Services and programs are offered by a team of supportive care physicians, clinical counsellors, registered dietitians, exercise therapists, and health professionals who are experienced in caring for people with cancer. Your supportive care team can provide guidance on healthful diet changes, safe supplements, exercise, and mental health issues, including stress reduction, emotional counselling, decision-making, and personal coaching. Inspire Health professionals will listen, answer questions, and work together with you, your family doctor, and your oncologist, if desired. 

As a result of the pandemic, many cancer patients are experiencing even more emotional and mental health distress due to isolation and uncertainty. Inspire Health is working to bridge the gap for cancer patients through online and virtual supportive care programs and services. Virtual visits are available via Zoom video teleconferencing, for face-to-face communication via private and secure video, along with messaging-based virtual care tools.

Inspire Health Programs:

  • Clinical servicesConsultations with supportive care physicians, registered dietitians, exercise therapists, and clinical counsellors. Patients are welcome to bring family/caregiver to clinical appointments. Clinical services include a 60-minute initial consultation and a 30-60 minute follow-up visit as required for:
  • Medical consultation with a supportive care physician
  • Nutrition consultation with a registered dietician
  • Counselling consultation with a clinical counsellor
  • Exercise consultation with an exercise therapist
  • Acupuncture for chemotherapy side effects

Inspire Health Classes:

  • Fireside information sessions
  • Yoga classes: yoga, gentle yoga, yoga chair, restorative yoga, advanced yoga
  • Exercise classes: Strength & Stretch, Aerobic,
  • Nutrition classes: Cooking classes
  • Mental Health classes: Stress reduction, Mindfulness, Gratitude, Meditation, Art, Qigong for sleep & relaxation, Emotional impact of cancer

Additional Inspire Health programs, classes and workshops are offered to provide knowledge, tools, and services to support your overall health and well-being during and after cancer treatment.

OTHER LOCAL SERVICES

  • BC Cancer Information Centres: Pamphlets and videos are available at each Cancer Centre on coping with hair loss and skin changes, as well as tips on head wraps, hats and scarf tying.
  • Look Good, Feel Better (LGFB) Workshop: LGFB workshops help women living with cancer learn special cosmetic techniques and tips on wigs and head coverings to help cope with the appearance-related side effects of cancer treatment. Sessions are usually once a month at a local venue or in your Cancer Centre. LGFB offers workshops one time only per person at no cost. In addition, a wig consultation and stylist service may be available at the session. To learn more or find a workshop in your area, call 1.800.914.5665 or visit their website 
  • No cost head coverings and wigs may be available at your Cancer Centre or at a Canadian Cancer Society (CCS) location near your Cancer Centre, including Vancouver at Jean C. Barber Lodge (next to BC Cancer) 604.879.9121 or Canadian Cancer Society 1-888-939-3333.
  • Greenleaf Medical Treatment located in Langley offers virtual appointments with Dr. MacCallum who specialize in medical marijuana for pain, sleep and other ailments.  After consultation they will provide a prescription of your appropriate dosage.  Dr. MacCallum is a clinical instructor at UBC medicine department and provides inpatient care at VGH BMT department as well at UBC internal medicine ward.  Greenleaf also offer free webinars on what and how to use cannabis for medical treatment.  The staff is very knowledgeable and will help you through the entire process of acquiring a license to obtain medical marijuana.
  • Visit additional information BC Cancer – 1st Canada cannabis trial for cancer symptoms

Costco Pharmacy: is open to everyone, not just members and often has the lowest prices for medications. Locations: 605 Expo Blvd. Vancouver BC. Tel: 604-622-5050


UBC Pharmacy Patient Support Services:  Available to anyone with questions or wanting assistance to get the best results from their drug therapies. One-on-one appointments with a pharmacist in-person, by telephone or by secure video conference. The first appointment is usually 60 minutes. Follow-up appointments are 30-60 minutes. The Pharmacists Clinic is located on the second floor in the Pharmaceutical Sciences Building at the UBC Point Grey Campus at 2405 Wesbrook Mall, Vancouver, BC V6T 1Z3. Tel: 604-827-2584

Physiatry is the medical specialty concerned with the medical treatment and rehabilitation of persons with physical problems and associated disabilities. Those include general medical conditions, neurologic disorder such as stroke, amputation, spinal cord injury, acquired brain injury, arthritis, soft tissue injuries and musculoskeletal pain syndromes. Ask your family doctor for a referral.

 

  • GF Strong Rehabilitation Centre – provides an outpatient physiatry and physiotherapy clinic and a broad range of other services. Patricia Mills is a physiatrist, clinician-researcher, physical Medicine and Rehabilitation Physician, Consultant at GF Strong Centre, Vancouver General Hospital, and University of British Columbia Hospital.
  • Freemason Volunteer Driver Program (no charge)Patients must be able to get in and out of a car unassisted, willing to share a ride and have some flexibility in the pickup and drop-off times. Contact them at least 24 hours prior to your appointment. 604-872-2034
  • Volunteer Cancer Drivers Society (no charge) They pick up cancer patients in all cities and communities throughout the North Shore, Greater Vancouver, the Fraser Valley to Chilliwack and south of the Canadian border. To book, visit their website or call their dispatch number at least 24 hours ahead. 604-515-5400.
  • Handy/DART for door-to-door public transit service.  Must be registered before using the service.

Myeloma Support Groups in BC and across Canada are part of a community run by myeloma patients and/or caregivers with the support of Myeloma Canada.  Please visit the Myeloma Canada website for up to date contact information of the over 30 support groups nationwide.

MYELOMA CANADA

Myeloma Canada

Head office – Dorval, Quebec

Toll-free: 1-888-798-5771
Email: 

Myeloma Canada is a patient-driven Canadian organization committed to improving the lives of all Canadians impacted by multiple myeloma. This means patients don’t need to parse information coming from other organizations but can rest assured that we’re getting uniquely Canadian information and approved and practiced treatments. Myeloma Canada is the ‘go-to’ organization and website for up-to-date and comprehensive help for Canadians. They are driven to empower patients, caregivers, and researchers on the journey. There is no end to the information you can research and discover out there, but if you’re looking for home-grown insight, look no further than Myeloma Canada.

 

Myeloma Canada started officially in 2005. Previously, there was virtually no organized, proactive outlet or community for helping people diagnosed with multiple myeloma. This concerned and frustrated Aldo Del Col and compelled him to start a support group in Montreal in 2004, which soon led to the creation of Myeloma Canada. The five-fold emphasis/vision of Myeloma Canada is:

  • Awareness
  • Education
  • Research
  • Advocacy
  • Community Empowerment

Myeloma Canada’s patient-driven approach is also evident in the staff and volunteers involved—most of whom have been touched by this unforgiving disease. The capable and versatile teamBoard of Directors, and P.A.C. (Patient Advisory Council), along with the Scientific Advisory Board and the Multi-disciplinary Advisory Council, lead and give strategic direction in fulfilling the organization’s goals and community.

Myeloma Canada/Wellspring peer support volunteers have first-hand experience as myeloma patients or as caregivers to someone with the disease. These volunteers are your true peers. Their shared experience may help you better understand, manage, or cope with your situation, provide you with a different perspective or valuable ideas and insights. Volunteers have undergone specialized training with Wellspring. Visit Wellspring Cancer Support and Myeloma Canada or call 1-877-499-9904.

One of the most practical and influential aspects of Myeloma Canada are the various Support Groups available throughout the country, including Vancouver Myeloma Support. Support Groups are grassroots and foundational and offer a safe and informative space for people living with myeloma and their caregivers. From general regional gatherings to peer support, virtual meetings and support for young families, the point is clear—you do not have to go on this journey alone; there is community, care, and cooperative help.

Quality of life is not a consolation prize: people living with myeloma have access through Myeloma Canada to the widest range of practical tools to flourish in this new reality.

Myeloma Canada is the only Canadian national organization dedicated specifically to myeloma. Sign-up to receive regular news, information and upcoming events.

Visit the Myeloma Canada website for up to date contact information for the over 30 support groups nationwide.

Myeloma Canada Virtual Support Groups

These closed groups offer a safe environment for users to connect and share with other myeloma patients or caregivers. As a closed Facebook group, information shared in the group is not visible to the general public. All members must be authorized to gain access.

Myeloma Canada offers numerous educational information booklets on specific topics and treatments. In addition, you can find information on clinical trials and lots of educational videos on the Myeloma Canada YouTube channel.

The educational handbooks are designed to provide educational support to patients, caregivers, families and friends.  These handbooks give accurate, reliable, and clear information on myeloma. You may find the information overwhelming at first, but do not worry. The more times you refer to the material, the easier it will be to understand. Over time, you will better understand the disease and what you can do to optimize your quality of life.

 

Myeloma Canada downloadable handbooks include:

Note that you may receive some of these handbooks during your first visit with your VGH BMT oncologist.  You can also request a free hard copy of any of these excellent Info Guides by sending an email to 

 

Myeloma Canada’s Myeloma Monitor is an award-winning, easy-to-use application (app) designed specifically for multiple myeloma patients and their caregivers. Developed entirely by Myeloma Canada, this intuitive app helps you organize, track and manage your daily activities so you can better understand the many changes that occur, and decisions that need to be made, throughout the various stages of your myeloma journey.

 

CANCER WEBSITES

Inspire Health Supportive Cancer Care

Location – 200 – 330 W 8th Ave Unit, Vancouver

Phone – 604-734-7125

Leukemia & Bone Marrow Transplant Program – VGH  

This website is intended to provide patients, families, physicians and health care workers with extensive information about the Leukemia/Bone Marrow Transplant Program of British Columbia at VGH.  You will find biography of the VGH Healthcare team, downloadable myeloma hand outs, information brochures, description of the VGH facility as well as resource on the latest treatments.

Lymphoma Canada

Lymphoma Canada is wholly Canadian.  All resources are derived from Canadian statistics and feature only Canadian specific information. All materials are reviewed and approved by a Scientific Advisory Board comprised of Canadian researchers and clinicians. All members of the Board of Directors reside in Canada and Lymphoma Canada funds only Canadian researchers.

The Leukemia & Lymphoma Society (LLS) of Canada 

Western Canada Chapter, LLS provides access to information and support for people with blood cancer. The Leukemia & Lymphoma Society of Canada offers many other support and educational resources. The Western Canada Chapter is located at 303-1401 W. Broadway Vancouver, BC. All LLS of Canada patient services programs are provided free of charge.

Tel: (604) 909-4126 Toll Free: 1 (866) 547-5433.

Wellspring Cancer Support

Wellspring helps people with cancer elevate their quality of life and strengthen their minds and bodies through innovative cancer support programs.  There are over 100 online programs available on all subjects ranging from yoga, nutrition, meditation, art workshops, self-paced learnings and downloadable resources. All programs are available free of charge. These sessions are led by a professional leader who is an expert in their field and trained to help oncology patients. Wellspring receives no government funding, relying entirely on corporate and individual donations.

Solitary Plasmacytoma Support:

Plasmacytoma is a rare disease and it is difficult to find information or to connect with other patients. Fortunately, there is lots of information and support through myeloma organizations and support groups, and there is now a Facebook Group specifically for Solitary Plasmacytoma patients.

Canadian Cancer Society

A national, community-based organization whose mission is to eradicate cancer and enhance the quality of life of people living with cancer. 

African Cancer Support

A Calgary based support group offered to Africana/Black individuals living with myeloma, caregivers, family members and friends.

For additional information email  or call 403-305-6161 or 403-880-6692.

 

MYELOMA WEBSITES

EUROPEAN MYELOMA NETWORK

Headquarters: Rotterdam, Netherlands

MISSION – Functions as an umbrella organization of myeloma researchers and clinicians from across Europe to share information and conduct effective research and clinical trials

COMMENTS:

  • Publications on latest research findings and clinical trials by European scientists and researchers in the field of MM
  • News on myeloma conferences and seminars throughout Europe

INTERNATIONAL MYELOMA FOUNDATION (IMF)

Headquarters: Los Angeles

E-mail: 

Phone: 1-818-487-7455 and Facebook group

InfoLine: 1-800-452-2873

MISSION – Improving the lives of Myeloma patients while working towards prevention and a cure through Research, Education, Support & Advocacy.

COMMENTS:

  • IMF InfoLine: Excellent information and support for myeloma patients worldwide. World’s most extensive array of information guides, publications and & videos on all aspects of MM
  • Blogs by Dr. Durie on current myeloma hot topics and summary of research findings from recent conferences
  • Links to sites that provide a wide range of information on topics ranging from sources of psycho-social support, pain management, caregiver support and resources available during international travel (local MM specialists, etc.)
  • Funds and coordinates leading-edge research, including by the affiliated International Myeloma Working Group (IMRG), to find the cure and improve quality of life for MM patients.

MULTIPLE MYELOMA RESEARCH GROUP (MMRG)

Headquarters: Norwalk, Connecticut

Phone: 1-203-229-0464

Patient Navigator Line: 1-888-841-6673

 MISSION – Find a cure for every patient with MM through driving discoveries of new treatments by funding research and conducting clinical trials

COMMENTS:

  • Excellent Patient Navigation Centre to help patients understand their diagnosis. It also provides support and answers questions. Staffed by professionals specializing in oncology. You can connect with a Patient Navigator by phone, e-mail or online web forum
  • Provides access to The Right Track Program: to access experts & centers of MM excellence, to ensure you are getting the proper tests and treatment.
  • Provides a Mentorship Program to connect you to another patient experienced in the type of myeloma you have, to provide advice and support

MYELOMA AUSTRALIA

Head Office Location: Victoria, Australia

MISSION – Seeks improved treatment outcomes for myeloma patients through raising

awareness, patient education, research and advocacy

COMMENTS:

  • Nurse-led information and support services for myeloma patients and their caregivers through InfoLine
  • Good online workshops and seminars
  • Publications and videos on latest myeloma topics and treatments

MYELOMA CROWD – HEALTHTREE

Headquarters: USA

E-mail: 

Phone: 1-800-709-1113

MISSION – Connect myeloma patients, caregivers and myeloma medical specialists in the drive to seek a cure, better treatment outcomes and quality of life in a forum that focuses on the sharing of patient experiences with myeloma.

COMMENTS:

  • excellent online community forums where patients post questions and share their
  • experiences on a wide range of topics ranging from diagnosis, to treatment, to living well with myeloma.
  • access to Healthtree University where medical specialists provide information on a wide variety of myeloma topics
  • includes Twin Machine which, links you with patients with the same type and stage of myeloma as you and patient data on treatment outcomes, etc.
  • Information on how 25 top myeloma specialists would treat you now, and the next steps in a treatment regimen for your myeloma
  • Lists and connects you with clinical trials suiting your myeloma type and stage

MYELOMA PATIENTS EUROPE

Headquarters: Brussels, Belgium

MISSION – To provide education, information and support to member groups and to advocate at European, national and local levels for the best possible research and equal access to the best possible treatment and care

MYELOMA UK

Headquarters: Edinburgh, UK

Email: 

MISSION – Focuses on the discovery, development and patient access to new effective

treatments for myeloma through research, education and raising awareness of myeloma

COMMENTS:

  • includes a good section on caring for a family member with myeloma
  • good discussion forum page for patients
  • an extensive range of publications & videos

African Cancer Support

A Calgary based support group offered to Africana/Black individuals living with myeloma, caregivers, family members and friends.

For additional information email  or call 403-305-6161 or 403-880-6692.

MYELOMA BOOKS & VIDEOS

Recommended Myeloma Books

  • Vancouver General Hospital Bone Marrow Transplant Patient Guidebook
  • Myeloma Canada Info guides, handbooks and numerous appsmyelomacanada.
  • Understanding Serum Free Light Chain Assays – one of many booklets available from myeloma.org
  • No Cure for Being Human – Katie Bowler
  • The living kitchen – Tamara Green + Sarah Grossman
  • Chris Beat Cancer – Chris Wark
  • Anticancer – David Servan-Schreiber MD
  • The China Study – T. Colin Campbell + Thomas Campbel – the healing power of food
  • And in HealthDan Shapiro
  • Care for Caregivers – Myeloma Canada
  • Caregivers Handbook – National Care Planning Council
  • A Lucky Life Interrupted. Tom Brokaw
  • Alvin’s Laws of Life – Alvin Law
  • Lost & Found in Lymphomaland by Aviva Rubin
  • The Emperor of all Maladies – Siddhartha Mukherjee
  • Multiple Myeloma: Plain English Handbook for Patients & Caregivers ­– by Robert J. Heller

Recommended Myeloma Books for Children

  • Kelsey and the Yellow Kite: This book was written to help explain what myeloma is to children. Kelsey and the Yellow Kite tells the story of a little girl called Kelsey whose dad gets myeloma. It explains what myeloma is in very simple terms and is beautifully illustrated by Christine Battuz.
  • Alex and the Bravest Dad or Grandpa in the World: This beautifully illustrated book tells the tale of Alex, a young lion who enjoys playful adventures with his father/grandfather. He becomes puzzled and upset when his father/grandfather is forced to slow down due to a relapse of multiple myeloma. Multiple myeloma is a disease characterized by periods of relapse and remission, and the book explains that Alex’s father/grandfather will experience periods of high and low energy. These are explained in a straightforward and non-frightening way, as are concepts such as plasma cells and cancer itself. There’s even a glossary toward the end of the book. The Multiple Myeloma Storybooks are available to download for free.

Helpful Myeloma Videos/Films/Documentaries

PRINTABLE DOCUMENTS

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